“Endometriosis Stole My Life”: What It’s Really Like to Live With the Condition

While many people feel comfortable, after living with the endometrium for more than a decade, Yaël says, “I felt that part of me died on the table in OR.

“You have overcome sadness. It is similar, for 10 to 12 years, you were told that you do not see the world in blue. You are crazy. You need to take this medicine. You start interrogating yourself. Am I crazy? Then one day, one of them says,” in fact, we discovered that your eyes are different and you We are Seeing the world in blue.

“There is a very crazy thing about something tangible and that it is invisible. This is the thing that no one could have further fracture Sees Endometriosis, people are nullified and length light all the time. “

According to Endowment of endometrial scanning alliance90 % of people with endometriosis say they are “not believers, rejects, or ignore them by others at least a month.” The survey also found that many people with endometriosis symptoms are informed that their struggles are “a normal part of being a woman” by family, friends, employers, as well as health care professionals.

Yael says: “The endometrium steals your life.” “And I was stolen to me.”

Sex and lining of the uterus: breaking taboo

Then there is the part that people often do not talk about – not with their friends, families, or even intimate partners. When you have a endometrium, it may be incredibly painful to enter a payment in your body, not to mention engaging in sexual activity.

lusterThe Lilani Macway Trade Product was diagnosed with endometriosis in 19, but its symptoms started in high school. “I remember that the lost school is because of my menstrual cycle,” she says. “I will face a problem and tell me that I am exaggerated, or I thought I was doing it myself and throwing myself.

“With one of my friends,” I continued, “I threw it while we were having sex, which is very embarrassing even to talk about it. But I didn’t want to tell him how bad harm.”

Such experiences, as well as societal pressures that prevent women from holding honest conversations with men about sex and their pleasure, led to Lailani wondering, “Are I just weak? Is this how sex is supposed to be sex?”

YAëL also remembers the existence of similar challenges when engaging in sexual intercourse. “I must go to treatment because sex has been painful since it became sexual active,” she says. “Crying, screaming of pain, never feel safe or comfortable.”

The majority of the women I met for this article stated that they have extensive and painful experiences during sex with partners. Studies indicate that more than half of people with endometriosis suffer from dysplasia – this is vaginal pain during sex. 2020 Study in the magazine Sexual medicine He realizes that dysuria is a symptom of endometriosis, which is often ignored by “embarrassment and normalization by doctors and patients.”

In the case of Lailani, in addition to having a very painful sex, medical professionals also told her that pregnancy may be very difficult. “The doctor told me that I will be sterile because I suffer from endometriosis,” she says. ))