PInfectious diseases such as the long cofide and Me/Global Food Security Committee (Essiditis and muscle marrow / chronic fatigue syndrome) is a mystery of the medical institution. Patients are reported by symptoms of a question such as severe fatigue, shortness of breath or muscle pain, but natural results often appear Routine medical examinations. Many patients do not seem to have a disease, which leads some to question the severity of their disease. In the absence of diagnostic tools or understanding of pathological physiological processes, many people find it difficult to share their experiments. They lack the verbal language that expresses the true effect of the disease.
Now, researchers from the University of Oxford uses the technique of “body mapping” to help patients connect the physical, cognitive and emotional dimensions of their disease better to family, friends and health professionals.
Ma’arit Jokilla Pancini of Oxford University is concerned with how to feel the disease. “People suffer from disease in several different methods depending on economic, social and cultural factors such as age, sex, or the possibilities of access to health care,” she says. “When we talk about health and disease, we must always take into account the place and time.”
Jokilla Pancini got acquainted with body maps for the first time when she was working in a women’s organization in Honduras who were running workshops in prisons. This technique, which includes creating a body -size diagram of the body, aims to capture patient experiments and has been used in Shock With Chronic pain Sick. “We call it” alternative maps drawing. ” “We are thinking about the body as a map: pain, emotions, and experiments, all of which are somewhere in your body, which in turn is seen in relation to a certain environment.”
Last year, I collaborated with the professor at Oxford Beth Greenho University, and they modified the method to suit their project A long perception of Kovid. Eight workshops have been organized so far in London and Oxford with the help of the charity Long support for Kofid. Participants start tracking their bodies on paper. They are then given a list of questions and ask them to draw, write or collect their answers on the map of their bodies. How was your healthy experience before you had a long coffeed? What is the effect of this on daily life? What kind of support you get? How does the disease change the way you look at yourself?
“Drawing body maps revolves around the story of stories,” says Jokilla Pancini. Most participants begin their heads or hearts. “The family members are often in the heart,” she says. Although each map of the body is unique, there are frequent forms, such as shadows. “Participants use it in the sense that they are now just a shadow of what they were before and that they feel that they have been left behind. The world has changed, but they still live in the shadow of the epidemic – an experience that can cause deep isolation.
HeyUNAG cousins in Long Support says that drawing body maps allowed it to think about how the disease appears in different parts of the body. Cozins participated in one of the first workshops and later joined the project as a researcher. You may ask: Where does the pain fall? Is it in the gut, in the heart, in the arms? : “All this is in your head?”
Uncle children find that the vocabulary used in relation to the Tawil Kofid is not useful. “Fatigue,” brain fog ” – these words do not do justice to what people really suffer. Fatigue seems to be fatigue, but it is in fact a deep disease. It looks like the worst waste in your life is associated with the worst influenza in your life. Your brain and your body feel all, and everything, weak Extreme and fragile. You are no longer. The same applies to the term “fog of the brain”, which has almost comfortable connotation. It does not come close to describing the extent of paralysis that cognitive symptoms can cause.
Cosins is now 29 years old. It had just qualified for the British Olympic Rowing team when it was wounded in March 2020 and then had a long -term coffee and Me/CFS. The disease forced her to abandon the rowing profession. This is painful. But it was not the most difficult part. “I was in the mid -twenties of my life; I should have been in my best health. But I spent them waiting for my body recovery. It was not just weeks or months, but it was years, and it is a time that I could never restore. It is the sadness of a life that you did not live – the things I could have done, the people I could have met, and the experiences that I could have obtained. “
The researchers have now developed a set of online tools that make the body mapping within reach more people, including those who cannot leave their homes because of their illness. “Next year, we hope that we will hold regular workshops online to draw body maps,” says Cosins.
forCan this tool already improve the health of people with long -term cofide disease? Jokilla Pannsini says, not in the sense that she will heal them. But creative research methods such as drawing body maps allow patients to express themselves differently so that their families and friends can, and perhaps even doctors understand what they feel better.
“I think these body maps have benefit,” says Caroline Chey Graham, a general general of Manchester and she is not involved in the research. “The demand for patients to record their symptoms can be useful not only for the individual, but it may also be useful to show the map of the body to the general doctor and say:” This is the place where all mysteries are. “This allows them to discuss each area of the body and symptoms And reach a management plan.
In addition, the maps of the body may give patients more credibility. “Many people suffer from Kovid’s disease for a long time with family members’s lack of believing,” says Chio Graham. “It is not only a healthcare professionals who can highlight patients, but also partners and family members.” This can be particularly true in some ethnic minority groups where fatigue is often stigmatized, as it happened recently with Zhu Graham I found in the study. Feeling not to care for care, as well as a decrease in awareness of available support, represents obstacles to those who have a long time to seek help.
Jacquella Bannsini believes that it is necessary to include patients from ethnic minorities in future studies. “We have a lot of data about white -layer white women, but we don’t have much information about women from immigrant wallpapers.” When the disease disrupts daily life completely, it is extremely important to take a comprehensive look at it. Sociologists, researchers in biomedics, doctors, patients, and careers play a role they play: “It is important to look at all these different classes, because each of them contributes to a better understanding of post -infection.”
